The condition, which causes too much cerebrospinal fluid to be produced that then builds up inside the skull, affects one or two people in every 100,000. It mostly affects women of childbearing age. However, men and children can also sometimes be affected.
Treatment is aimed at preventing permanent visual loss and decreasing the build-up of fluid in the brain and may include surgery. For many people, a combination of medical and surgical treatment can help to control their symptoms.
It is essential to detect the condition early and to start treatment early to prevent permanent loss of vision occurring.