Martin Watson, from Glasgow, was born without a nose - a condition called Arhinia - and breathes through a tracheostomy tube in his neck, which needs regular care because a blockage could prove fatal.
The 12-year-old, who is also in a wheelchair and attended Croftcroighn School, Craigend, for 10 years, having started as a nursery pupil.
He was due to start Newhills Secondary, in nearby Easterhouse, last month. But he has yet to attend a class.
Glasgow City Council and officials from the Unison union are locked in a dispute about the medical care of pupils with additional needs, while support assistants are taking part in industrial action and can't care for him while he is at school.
The row means Martin, who needs two assistants with him at all times, is the only pupil out of 75,000 in the city unable to go to school.
He has been caught in the middle of a 'work to rule' dispute that has stopped support for learning workers supervising and administering drugs if it is not detailed in their job description.
Unison officials claim the workers are not contracted or paid enough to carry out these duties.
Martin's mother Sandra Lennox, 42, said the youngster was "fed up" in the house and she was worried about him missing out on his education.
Sandra, of David Court, Gallowgate, said: "Newhills is a special needs school, I don't understand why there is no one there who can look after him.
"And I am angry he is the only child in the city who is being made to suffer in this way. It is not acceptable"
Martin has had a number of operations over the years. He is fed through a gastric tube and also has lung disease called bilateral bronchiectasis.
His mother added: "He can't talk but is able to communicate by nodding his head.
"Martin is a happy boy who loves his PlayStation, just like any other 12-year-old.
"He has always enjoyed going to school and his favourite subject is maths.
"But I worry that the longer he is unable to attend the harder it will be for him to settle in.
"Martin is missing out on important social interaction with other children and mental stimulation."
He is visited by a teacher from Newhills for two hours of lessons every week, but his mother says he struggles to concentrate in the house and the lessons there do not compare to the five days at school he is used to.
Sandra has also had to turn to respite carers who visit her home to give her a break from caring for Martin, which she said she would normally get during his school time.
She added: "I can't fault the teachers, they are trying their best, but I feel that this has gone on for long enough now.
"I would be in court if I was the one stopping my son from going to school. This needs to be resolved."
Across Glasgow, a total of 1000 pupil support assistants, or support for learning workers as they are now called by the council, are taking part in industrial action over the supervision and administration of medication.
Their 'work to rule' means they will do only duties detailed in their job description.
Unison says the workers are not contracted to or paid an adequate amount of money to carry out these vital health care tasks and want the council to spend more money for the care of vulnerable pupils by employing dedicated staff or paying pupil support assistants more across the board.
However, the council says the workers have been carrying out these duties for years and are given the necessary training and extra payments to do so.
Despite weeks of talks both sides still disagree.
A council spokeswoman said the authority was working to resolve the issue and support Sandra and Martin.
The spokeswoman added: "Martin is one child in 75,000 who has been adversely affected by this action, but he is one child too many. It is important we get this dispute resolved so Martin can go back to school."
In the latest attempt to find a solution the authority has written to all staff concerned and asked them to accept changes to their contracts to include the supervision and administration of medication.
But Carol Ball, education convener for Unison in Glasgow, said this was not acceptable for union members.
She said health care workers employed by the school could care for Martin if he needed medical help.
The union official added: "Some pupil support assistants feel pressured or coerced into giving medical care to pupils, and some are not confident about carrying out these tasks.
"These children are precious to all of us and we just want them cared for properly."