Brightest Star was started by Derek Kennedy and Arlene Clarke, both 29, after their son Jack died six days before his sixth birthday, which was on Christmas Day.
Wee Jack went to bed with a slight temperature, but there was nothing to suggest he was seriously ill.
After waking up in the morning and telling his dad he was tired, Jack went back to sleep for the last time.
Barely an hour later, Derek found Jack unconscious and not breathing in his room.
What followed was every parent's worst nightmare.
Derek, a joiner and semi-professional footballer with Neilston Juniors, said: "When I saw him lying on the floor I thought he was just having a carry on.
"I went over to him and he wasn't breathing.
"He was a healthy, active wee boy and there were never any health problems up until that point. It was such a shock."
Jack was treated at Paisley's RAH where doctors got his heart started again, but Derek and Arlene were warned the lack of oxygen to his brain would cause brain damage.
He was to be transferred to Yorkhill Children's Hospital, but there were no beds available.
Instead he was taken to Edinburgh, but there was no room in the ambulance for his devastated parents.
Derek added: "That was very difficult to take, not being able to go with him.
"There is a bigger ambulance for Yorkhill that means parents can go with their children, but as we were going to Edinburgh there wasn't one for us.
"One of the aims of Brightest Star is to raise enough money to buy another of those ambulances that can be used no matter what hospital you need to go to."
Within 24 hours at the Royal Hospital for Sick Children, doctors discovered that a virus had caused Jack's heart to stop.
He died in Arlene's arms, with Derek at his side, on December 19, 2012.
Arlene, a teacher, wanted to make sure Jack's name lived on and set up Brightest Star to offer support to other devastated families.
The support idea soon turned into a fund-raising machine and on October 12, Brightest Star is holding its first charity ball at the Hilton in Glasgow.
And a five-a-side football tournament at Barrhead's Cowan Park on September 28, will also bring in funds.
Neilston Juniors even have a change strip featuring the Brightest Star logo, donated by an anonymous supporter of the club.
Derek said: "Raising enough to pay for the ambulance in the long term would be great, and Arlene also wants to train parents and grandparents in first aid.
"The website has a list of our aims and how to get in touch."
Visit brighteststar.org.uk to find out how you can get involved in the fundraising, or to access the support on offer.