Little Frazer Taylor had spinal muscular atrophy (SMA), a genetic disease that causes muscle weakness and loss of movement.
It was only diagnosed at five months but his condition deteriorated and he was sent home from hospital to die before his first birthday.
His family held an emotional funeral service at Linn Crematorium in Glasgow but was told there would be no ashes so they put a memorial plaque on a tree in the grounds.
His sister Lynsay is determined to find out what happened to his ashes.
She said Frazer's death and the way his ashes were discarded has left her mum Susan, 56, distraught and unable to cope.
But Lynsay is determined to find out and has joined other families after reading about their heartache in the Evening Times.
Lynsay was only 12 when Frazer died in 1992 but she has never forgotten her little brother.
She has now joined with hundreds of other families in their bid for answers and is in the process of taking legal action against the crematorium.
Frazer's case will also be looked into as part of the National Investigation Team set up by the government after she registered the case.
Mum-of-four Lynsay, now 33, from Kilmarnock, said: "We had 10 precious months with Frazer and we will never forget him.
"We think of him every minute of every day.
"He was a great baby and happy and healthy until he was diagnosed.
"He deteriorated quickly and we nursed him at home until he passed away.
"I feel we will never get closure and my mum is really struggling with this.
"We need answers and I hope the investigation unit will be able to tell us what happened to Frazer."